It seems like someone is always fundraising for something, and it can feel impossible to balance a budget during girl scout cookie season. So for those who feel like they can't give $, I understand. Here's a little piece of my story, a mini behind-the-scenes look at why this cause matters to me, and why now.
DO YOU WANT TO KNOW
WHY I TAKE STEPS?
Imagine being 14 years old, swearing up and down that you're NOT anorexic, and that you're not eating because your stomach hurts. You keep going to school because honestly, the distraction helps, but your blood boils every time someone notices your size 8 turned size 00 figure and comments "you like great!". My mom raised me with good manners so I put on that fake smile, said something like "aww thanks" and vented to my friends later. Imagine being 14 years old, and being scheduled for a colonoscopy. Thank God that my tribe was mostly future doctors, and they were fascinated more than grossed out by the "butt camera" details. Fast forward 10 years and hundreds of blood draws later, and imagine the next chapter of the battle. Imagine you have a husband and a job, and after years of being relatively okay, the pain is back with a vengeance. Your doctor suggests surgery. For years, you've been so careful, knowing that getting pregnant during a flare could be disastrous, and your doctor tells you not to let your disease control your life. But what if... and what if... the fears are too scary to even speak them.
Now fast forward one more time, another 7 years to the current day. You're living the American dream. Married, employed, with 2.5 kids and a house with a yard. Your disease is under control (at least according to the tests), but you still have accidents more often than your children. You look at these adorable amazing miniature versions of yourself, and remember that your disease has a genetic component.
Sure, I'd love a cure for Crohn's Disease. I'd love to not need IV medication every 8 weeks, to not need to think about horrible prep drink for at least 20 years, instead of 3. But that stuff doesn't bother me anymore. Like so many other hardships in life, I've adjusted, and barely notice that it's not normal. I take steps and I am 100% committed to this cause, not for myself, but for the millions of younger patients. For the ones who got diagnosed at age 7, and never got to have a normal childhood. For the ones who's surgery didn't help, who's medication doesn't help, and who feel like they won't ever be able to date, or work, or go on vacation like a normal person. I #TakeSteps to stop the stigma, to raise funds, and to do what I can to save others from the pain that I've experienced.
I've lived with Crohn's Disease since sophomore year of high school, and have had more than my fair share of pokes and prods. Yes, it's true that what doesn't kill you makes you stronger, and my diagnoses helped shape me into who I am today... but that doesn't mean I'd wish it on my worst enemy. So if you can spare the cost of a few fast food meals, consider donating them to CCFA, your guts will be glad that you did, and many others will be forever grateful.
xoxo
MamaGali
